Group helps those with autism
I am writing this letter in regards to the lack of reliable services for children on the autism spectrum. There are many service providers in and around the area but it is hard to find a program that offers the consistency that many of these children need. We recently received services through a local agency that offered an aide that came into our home and worked with our daughter. When we first started, I wish someone would have told me that the workers that fill these positions are not taking the job as a long-term career but merely as a “stepping stone” until they can move on to something better.
My daughter has Asperger’s syndrome, which is most easily described as a mild form of autism. One of the most important things she needs is consistency. Any change in her routine causes her tremendous amounts of stress. The first aide we had was never on time, called off frequently and left early. Needless to say we requested someone else.
The second and last aide was wonderful, at first anyway. She was patient, understanding, willing to do whatever it took to help our daughter. She was with us for several months and our daughter built a close relationship with her.
Then, one night she told us she would be quitting the following week. She explained her situation and while not happy about it we were able to get my daughter to a point where she was OK with it.
However, the following week, which was to be her last, she was not able to make it due to inclement weather. This was completely understandable, but on what was to be her last day, I received a text message from her saying simply, “I can’t make it tonight, sorry.” She made no offer to reschedule, call our daughter. She gave no explanation at all. (Thanks)
Because of this lack of closure our daughter has significantly regressed, and the only help I was offered through this particular agency was that they would help me find another local agency that offered the same services. In the same sentence I was told that all agencies are essentially the same, though they all have high turnover rates for the aide positions.
The only support we have right now is a group called PAK, which stands for “parents of autistic kids.” It is a support group that meets on the first Tuesday of the month from 6:30 to 8 p.m. at the Fayette County Behavioral Health building on Jacob Murphy Lane in Uniontown. It is for parents and children who are on the autism spectrum, or have similar conditions. It is free to be a member. All they ask in return is some of your time to help people gain a better understanding of autism and autism awareness.
They do many different community outings, and each year hold a fundraiser and luncheon. Their activities are designed to not only help the children and families but to also help the public gain a better understanding that autistic people are not that much different than you or I. At the meetings they also share their experiences and offer solutions to everyday issues that arise with autistic children. Without this resource my husband and I would be helpless raising our daughter.
So to all parents and families who feel like there is nowhere to turn for help, I want you to know there is a support system out there. Please come check us out
Jennifer Van Sickle is a resident of Farmington.